Agenda.
Day 1
Thursday, 23 April
Chair: Dr John Allen, Co-Chair of the All Ireland Children’s Palliative Care Conference 2026 and Consultant in Paediatric Palliative Medicine, Children’s Health Ireland at Crumlin and the National Maternity Hospital Holles St.
Dr Abby R. Rosenberg, Chief Pediatric Palliative Care, Dana-Farber Cancer Institute, Boston Children's Hospital, Harvard Medical School, U.S.A
Dr Dan Lumsden, Consultant Paediatric Neurologist, Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, UK
Chair: Ms Liz O’Donoghue, Assistant Director of Nursing, LauraLynn Children’s Hospice
Dr. Doireann Pereira, CHI at Temple Street
2. Parents’ Experiences of Healthcare Professionals’ Discussions of Loss and Grief Following Severe Neurological Impairment DiagnosisMs. Elaine Brennan, University College Dublin
3. Incorporating Markers of Medical Complexity into Definitions of Population-Level Need for Children’s Palliative Care: a Delphi StudyDr. Samantha Smith, Trinity College, Dublin
Chair: Ms Fiona Woods, Head of Clinical Education, LauraLynn Children’s Hospice
Professor Jonathan Koffman, Professor of Palliative Care, Wolfson Palliative Care Research Centre at Hull York Medical School
1. Irritability & GI Dystonia in a Patient with Nacc1 Gene Variant: Clinical Features and Management Approach Dr. Monerah Mobarak, Cork University Hospital 2. An Exploration of Palliative Care Nurses’ Attitudes Towards Providing Care for Adolescent and Young Adults with Life-Limiting Illnesses in Hospital and Community Settings Dr Karie Dennehy, Marymount University Hospital and Hospice 3. A Narrative Review of Education and Training in Paediatric Palliative Care for Medical Professionals Dr. Katie Flinn, Children's Health Ireland
Chair: Ms June Foxton, Liaison Nurse Manager, The Jack and Jill Children's Foundation
Tara Kerr-Elliott, Nurse Consultant at Helen and Douglas House, U.K.
Day 2
Friday, 24 April
Facilitated by Dr Abby R. Rosenberg, Chief, Pediatric Palliative Care, Dana-Farber Cancer Institute, Boston Children's Hospital, Harvard Medical School, U.S.A
IMPORTANT: PLACES AT BOTH WORKSHOPS ARE LIMITED. ATTENDANCE MUST BE BOOKED WHEN YOU REGISTER TO ATTEND THE CONFERENCEFacilitated by Tara Kerr Elliott, Director of Care at Alexander Devine Children’s Hospice and Rev Daniel Caldwell, Lead Chaplain in Atlantic Technological University and Lecturer in Palliative and End of Life Care
IMPORTANT: PLACES AT BOTH WORKSHOPS ARE LIMITED. ATTENDANCE MUST BE BOOKED WHEN YOU REGISTER TO ATTEND THE CONFERENCEChair: Dr Jonathan Clarke, Paediatric SpR, CHI
Dr Sophie Bertaud, Consultant in Paediatric Palliative Medicine, Great Ormond Street Hospital for Children, London, UK
Dr. Anne Haddick, Wales
2. Compassionate Extubation in the Neonatal Intensive Care Unit: Retrospective Review of Practices, Experiences and AttitudesDr. Niamh Conlon, Children's Health Ireland
Dr Feargal Twomey, Consultant in Palliative Medicine, Milford Hospice & HSE Mid West, Adjunct Clinical Associate Professor, UL School of Medicine Clinical Lead, National Clinical Programme for Palliative Care, HSE/RCPI
Dr David Graham, Consultant Paediatrician, Northern Ireland Regional Paediatric Palliative Care Network
Chair: Ms Alison Cashell, Clinical Nurse Coordinator for Children with Life-Limiting Conditions, Dublin North
Rev Daniel Caldwell, Lead Chaplain in Atlantic Technological University and Lecturer in Palliative and End of Life Care
Ms Amilah Ali, Community Worker in Islamic End of Life Care and Funeral Support
Chair: Dr Hannah Linane, Consultant in Palliative Medicine with a Special Interest in Adolescents and Young Adults, St James’ Hospital and CHI
Helen Arthur, Katerina Cussen, Louise Keegan and Lisa McAuliffe, Senior Music Therapists LauraLynn Children's Hospice
Dr Abby R. Rosenberg, Chief, Pediatric Palliative Care, Dana-Farber Cancer Institute, Boston Children's Hospital, Harvard Medical School, U.S.A
Dr Stacey Power-Walsh, Co-Chair of the All Ireland Children’s Palliative Care Conference 2026 and Assistant Professor in Nursing (Children’s and General – Integrated), UCD School of Nursing, Midwifery and Health Systems
A Multidisciplinary Conference funded by
