Speakers

Keynote Speaker

Professor Abby Rosenberg

Chief, Pediatric Palliative Care, Dana-Farber Cancer Institute, Boston Children's Hospital, Harvard Medical School, U.S.A 


Title of presentation #1: The Science and the Art of Resilience: 5 Lessons from Patients, Communities, and Society

Title of Presentation #2: Taboo Topics: Strategies for navigating tough conversations with Adolescents and Young Adults with Cancer

Workshop: Building a Resilience Toolkit: an interactive workshop

Biography

Abby R. Rosenberg, MD, MS, MA is the Chief of Pediatric Palliative Care at the Dana-Farber Cancer Institute and Boston Children’s Hospital, and Professor of Pediatrics at Harvard Medical School. She received her Medical Doctorate at Stanford University School of Medicine, and completed her Pediatric clinical training at Seattle Children’s Hospital and the University of Washington. She also holds advanced degrees in epidemiology and biomedical ethics. Dr. Rosenberg’s research focuses on developing and implementing programs to enhance resilience and improve quality of life among young people with serious illnesses and their families. She has published over 275 peer-reviewed manuscripts on pediatric and adolescent/young adult palliative care and spoken at over 100 venues worldwide. Dr. Rosenberg has received numerous honors, including awards in Faculty Mentoring, Lifetime Achievement, and Groundbreaking research, policy, and advocacy that has changed the course of child health in the US. She is recognized as one of the leading pediatric researchers in the US, with memberships in the American Society of Clinical Investigation and the American Pediatric Society.

Here, she will provide 2 platform presentations: one, describing the lessons she has learned about resilience from patients, families, and communities; and, two, describing how to navigate tough conversations with adolescent and young adult patients. She will also conduct her award-winning "resilience workshop" for those who are interested in learning practical skills for their own well-being.

Invited Speaker

Professor Jonathan Koffman

Professor of Palliative Care and Director of the Wolfson Palliative Care Research Centre at Hull York Medical School. 


Title of presentation: Ethnic Disparities in End of Life

Biography

A social scientist by training, his research focuses on inequalities in palliative and end-of-life care, particularly the impact of ethnicity, culture, and social disadvantage on patients and families. He has extensive expertise in developing and evaluating complex interventions, mixed methods research, and the analysis of large, linked datasets. His work informs national and international policy on equitable access to palliative care.

Dr. Sophie Bertaud

Consultant in Paediatric Palliative Care, Great Ormond Street Hospital for Children, London (UK)


Title of presentation: Ethical considerations in perinatal palliative care: a relational approach

Biography

Sophie is a Consultant in Paediatric Palliative Medicine at Great Ormond Street Hospital and a Senior Clinical Research Fellow at the Ethox Centre and theUehiro Centre for Practical Ethics at the University of Oxford. She has a longstanding interest in medical ethics and completed her MA in Bioethics at NewYork University in 2012 with the support of a Fulbright scholarship. Her PhD focuses on ethical considerations in antenatal palliative care and is funded by aWellcome Trust Fellowship for Health Professionals in Humanities and Social Science.

Her talk will present preliminary findings from her PhD which explores some of the ethical challenges in perinatal palliative care and uses an ethics of careframework to understand the ethical dimensions of patient-caregiver relationships in this setting.

Rev. Daniel Caldwell

Lead Chaplain and Lecturer in Palliative and End of Life Care, Atlantic Technological University


Title of presentation: Pursuing Cultural Humility: Confronting bias and creating meaningful engagement

Biography

Rev. Daniel Caldwell is the Lead Chaplain in the Atlantic Technological University and a lecturer in Palliative and End of Life Care. He is co-chair of the All-Ireland Institute of Hospice and Palliative Care (AIIHPC) community of practice for Chaplaincy and Pastoral Care and a member of AIIHPC Psychological, Social and Spiritual Care Special Interest Group.

Daniel’s teaching and research is focussed on the impact of culture, ethnicity, religion and spirituality in the delivery of quality palliative and end of life care. Given the changing social landscape in Ireland his work focusses on how we can better deliver ‘spiritual care’ to patients and families from all faith backgrounds and those who have none.

A Multidisciplinary Conference funded by