Agenda.

Day 1

Thursday, 23 April 2026

09:00 Registration, Coffee, Networking & Poster Exhibition
10:00 Welcome
SESSION 1

Chair: Dr John Allen, Co-Chair of the All Ireland Children’s Palliative Care Conference 2026 and Consultant in Paediatric Palliative Medicine, Children’s Health Ireland at Crumlin and the National Maternity Hospital Holles St.

10:05 The science and the art of resilience: 5 lessons from patients, communities, and society

Dr Abby R. Rosenberg, Chief, Pediatric Palliative Care, Dana-Farber Cancer Institute, Boston Children’s Hospital, Harvard Medical School, U.S.A.

11:05 Oral Abstract Presentations

Incorporating markers of medical complexity into definitions of population-level need for children’s palliative care: a Delphi study, Dr Samantha Smith, Trinity College Dublin

An exploration of palliative care nurses’ attitudes towards providing care for adolescents and young adults with life-limiting illnesses in hospital and community settings, Dr Karie Dennehy, Marymount University Hospital and Hospice

11:30 Stretch, Coffee, Networking & Poster Exhibition
SESSION 2

Chair: Ms Liz O’ Donoghue, Assistant Director of Nursing, LauraLynn Children’s Hospice

12:00 Care does not end at death: exploring the experiences of bereaved parents in the care of their child after death

Tara Kerr-Elliott, Nurse Consultant at Helen and Douglas House

12:55 Oral Abstract Presentations

Parents’ experiences of healthcare professionals’ discussions of loss and grief following severe neurological impairment diagnosis, Ms Elaine Brennan, University College Dublin

Preferred place of death – giving patient's autonomy, Dr Anne Haddick, Wales

13:20 Lunch, Networking & Poster Exhibition
SESSION 3

Chair: Ms Fiona Woods, Head of Clinical Education, LauraLynn Children’s Hospice

14:20 Ministerial Address

Dr Jennifer Carroll MacNeill, Minister for Health

14:35 Recognising and managing movement disorders in children and young people with life limiting conditions – how and why

Dr Dan Lumsden, Consultant Paediatric Neurologist, Evelina London Children’s Hospital, Guy’s and St Thomas’ NHS Foundation Trust, UK

15:25 Stretch Break, Coffee, Networking & Poster Exhibition
SESSION 4

Chair: Ms June Foxton, Liaison Nurse Manager, The Jack and Jill Children’s Foundation

15:45 Oral Abstract Presentations

Compassionate extubation in the neonatal intensive care unit: retrospective review of practices, experiences and attitudes, Dr Niamh Conlon, Children’s Health Ireland (CHI)

Irritability and GI dystonia in a patient with NACC1 gene variant: clinical features and management approach, Dr Monerah Mobarak, Cork University Hospital

16:10 Ethical considerations in perinatal palliative care: a relational approach

Dr Sophie Bertaud, Consultant in Paediatric Palliative Medicine, Great Ormond Street Hospital for Children, London, UK

17:00 Day 1 Close

Day 2

Friday, 24 April 2026

08:00 Workshop 1: Building a Resilience Toolkit

Facilitated by Dr Abby R. Rosenberg

Location: Shannon Suite

08:00 Workshop 2: Bridging worlds: culture, compassion and the end of life

Facilitated by Tara Kerr Elliott and Rev Daniel Caldwell

Location: Harris Suite, Level 6

Important

Places at both workshops are limited. Participation must be booked in advance when you register to attend the conference.

09:10 Welcome
SESSION 5

Chair: Dr Jonathan Clarke, Paediatric SpR, CHI

09:15 Implementation of the ‘Bee Wee’ report – tús maith formhór na h-oibre

Dr Feargal Twomey, Consultant in Palliative Medicine, Milford Hospice & HSE Mid West, Adjunct Clinical Associate Professor, UL School of Medicine, Clinical Lead, National Clinical Programme for Palliative Care, HSE/RCPI

09:30 Northern Ireland paediatric palliative care updates

Dr David Graham, Consultant Paediatrician, Northern Ireland Regional Paediatric Palliative Care Network

09:45 Oral Abstract Presentations

A narrative review of education and training in paediatric palliative care for medical professionals, Dr Katie Flinn, CHI

The role of media in paediatric palliative care: a review, Dr Doireann Pereira, CHI at Temple Street

10:10 Taboo Topics: strategies for navigating tough conversations with adolescents and young adults with cancer

Dr Abby R. Rosenberg

11:05 Stretch Break, Coffee, Networking & Poster Exhibition
11:15 Children's Palliative Care Specialist Interest Research Group Meet and Greet

Location: Harris Suite, Level 6

SESSION 6

Chair: Ms Alison Cashell, Clinical Nurse Coordinator for Children with Life-Limiting Conditions, Dublin North

11:35 Pursuing cultural humility: confronting bias and creating meaningful engagement

Rev Daniel Caldwell, Lead Chaplain in Atlantic Technological University and Lecturer in Palliative and End of Life Care

12:15 Islamic end-of-life support for children and their loved ones

Ms Amilah Ali, Community Worker in Islamic End of Life Care and Funeral Support

12:35 Questions and Answers Session
12:45 A Parent’s Perspective
13:00 Lunch
13:30 Rapid Fire Journal Club

Location: Harris Suite, Level 6

SESSION 7

Chair: Dr Hannah Linane, Consultant in Palliative Medicine with a Special Interest in Adolescents and Young Adults, St James’ Hospital and CHI

14:00 Music therapy in children’s palliative care: an experiential exploration of down-regulation and rest

Helen Arthur, Katerina Cussen, Louise Keegan and Lisa McAuliffe, Senior Music Therapists, LauraLynn Children’s Hospice

14:20 Is palliative care inadvertently racist?

Professor Jonathan Koffman, Professor of Palliative Care, Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, UK

15:20 Abstract prizes & final comments

Dr Stacey Power-Walsh, Co-Chair of the All Ireland Children’s Palliative Care Conference 2026 and Assistant Professor in Nursing Children’s and General (Integrated), UCD School of Nursing, Midwifery and Health Systems

15:30 Conference close
CPD HOURS

RCPI: Approval is for 23/04/2026 (6 CPD) and 24/04/2026 (6 CPD)

NMBI: 11 CPD Hours awarded in accordance with NMBI guidelines